Article archive
Chemo changed this week.
06/04/2015 20:15
Consultant stopped chemo this week at appointment on Wednesday in preparation for transplant; medication changed too. Tests this week as part of pre-transplant on Friday and meeting Lead Nurse to look round where I will be staying on admission. Looking forward to this as we have lots of questions...
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Easter .........
04/04/2015 00:00
Good to spend Easter with Sally and family. Ben celebrated his birthday bash with Kat and was joined by his brother James and his wife Rhi. On Sunday we met up with Sister and Brother in Law Cate & Jed and their families for a lovely lunch at Cams Mill.
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Cate + IoW challenge ....... in St Bede Newsletter
01/04/2015 22:21
St Bede Primary School HSA
On Saturday 2nd May, four St Bede mums will be walking the 32km Isle of Wight Challenge to raise funds for MDS. If you can spare even a small amount, they would be delighted if you could sponsor them...
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MDS - Why we need funds
01/04/2015 22:19
We are able to run the MDS UK Patient Support Group thanks to donations from individuals and businesses, fundraising events and grants from pharmaceutical companies – as well as memorial donations from families who sadly lost a loved one to MDS.
MDS UK does not currently receive any other types of...
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Another good week
28/03/2015 20:13
I have discovered that me having a good week does not necessary mean my blood counts believe it!!! Had 3 units this week with a bit of an issue as my blood reacted in the "cross matching phase" - extra sample sent off to Bristol, but I am pleased to say all ok. Oh and platelets which are now...
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Provisional Date for admission
27/03/2015 12:00
Found out that the provisional date for admission for pre transplant treatment has been set for 3 May ..... still number of tests for me to go through and my donor, but good news - a number of these for me are on 10th April. Meeting the lead transplant nurse after the tests so she can share what to...
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Well done Russell
22/03/2015 19:51
Just the chance to say Well Done to Russell (an MDS transplant survivor) and ambassador for MDS, as he completed the Reading half marathon today raising much need funds for the MDS patients association.
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Nice break on Isle of Wight
21/03/2015 17:28
Sally has been on leave this week and we took the opportunity to use the spa break given to us at Xmas by James, Rhi and Ben!! Great present and we booked a hotel (Melville Hall) on Isle of Wight ( we should have gone to Lanzarote on Sunday) so a welcome distraction from that.
We had a lovely...
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Mothers Day
15/03/2015 19:07
Great mothers day with family meal at lunchtime. Good to do normal things and catch up with everyone. Sally on leave this week and we are going to I o W on Wednesday for a break together, probably last one before transplant, having had to cope with disappointment of not being able to go to...
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Finished Chemo, changes in blood products prescription, reflections on National Service Framework
13/03/2015 18:35
All well with chemo and finished the cycle. Impact is cumulative and I have felt more tired after this third time. Discussion with consultant included being prescribed irradiated blood products and special platelets which will help on the step towards transplant, all part of the science which is...
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