My Journey with MDS

Article archive

If I say I am ok ....................

08/03/2015 21:21
If I say I am ok ....................     Sometimes when I say I am ok. I need someone to look me in the eyes, hug me tight and say  I know you are not      Social Meems   
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Isle of Wight Challenge - Sue Bunyan

08/03/2015 21:10
Sue Bunyan's fundraising page Fundraiser:  Sue Bunyan   My page: https://uk.virginmoneygiving.com/SueBunyan   Many of you will know I love a physical challenge whilst raising much needed money for charities close to home - this years challenge is to walk halfway round the...
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Uneventful Week really

07/03/2015 12:49
Chemo week went quite well ......... did feel tired but otherwise ok. Blood dropped at Monday's blood test which was a bit disappointing so booked in for three units of blood Tuesday plus platelets (although ended up having these on Wednesday in the end) From next week my platelets will have to be...
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Myth busting around stem cell donation - Anthony Nolan

05/03/2015 22:30
MYTHBUSTING BONE MARROW AND STEM CELL DONATION Help us save more lives by busting myths about donating bone marrow and stem cells  Our lifesaving work has come a long way in the past 40 years. Our knowledge of stem cells has expanded, and the bone marrow transplant process has...
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THE WAY BACK TO WORK - New Anthony Nolan Publication

05/03/2015 20:03
Anthony Nolan have produced a really good publication on getting back to work after a stem cell transplant, For some post-transplant patients, going back to work is a key milestone on the long road to recovery. It can represent a return to normality, a chance to feel useful again, and an...
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Seems like only yesterday I finished Chemo and it's round 3

01/03/2015 18:29
Yes Chemo starts again tomorrow - another 7 days of injections, so a daily commute to QA Hospital for me. Weekly blood test again tomorrow too. Results back suggest blood levels fallen more than usual so I am in for 3 units of red on Tuesday !! As always grateful to those who are donating their...
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Away from MDS - tracing my birth mother

26/02/2015 21:18
Many people will know that I am adopted and before I was diagnosed I was in the process of searching for my birth mother. Unfortunately she died nearly 20 years ago. I have however been in contact with her younger brother and sister which is really nice. Had a great conversation with my Aunt again...
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Didn't make the pre transplant tests !

25/02/2015 20:28
Best laid plans and all of that - my transfusion needs overtook pre transplant tests yesterday, which I was less than happy about on a number of levels not least the waste of resources. But I guess I have to get grumpy about something or its not me! On the whole I am feeling much better than I...
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New Delete Blood Cancer campaign video

22/02/2015 17:32
vimeo.com/120172929 What are you made of?
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Good Week - different things

21/02/2015 20:41
Overall I am feeling better than I have for some time, which I am pleased about. Had a consultants appointment this week....... must admit to being surprised at the blood test results. Perhaps the chemo is beginning to make a difference but it is early days The major change was iron content in my...
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