My Journey with MDS

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Website Hits

02/02/2015 00:00
314 unique visitors to website in January ............Wow!!!!   Let me know if you want anything on the site………
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Interesting Week .....

01/02/2015 19:27
So end of another eventful week. Chemo starts again tomorrow so trying to keep bug free for this cycle of 7 days worth of injections. Blood tests, transfusions and I am having a PICC line inserted on Thursday too.  Well done to my colleague Lynne on completing her Dryathalon. Best wishes to...
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Well Done Lynne !!!!

01/02/2015 18:26
Congratulations on achieving the Dryathalon and raising over £700 from work colleagues, family and friends for MDS. Brilliant achievement. 
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Gosport Area Team raises funds for MDS

01/02/2015 11:24
Well done to all who donated cash instead of sending Xmas cards around the office to raise funds for a local hospice and MDS Patient Support Group. Thanks so much for thinking about MDS - it is really appreciated.
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Lynne completed the challenge .............

01/02/2015 00:00
Well done to my colleague Lynne who completed her Dryatholon challenge raising funds for MDS and promoting Delete Blood Cancer and getting swabbed to be a potential stem cell donor......... in the process raising almot £500 for MDS. Brilliant achievement esp as she had a birthday in the middle of...
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Great News - Donor Found

27/01/2015 16:40
  So I had an appointment today with my transplant consultant at University Hospital Southampton, which went well. In essence they have a good match (9/10) rather than the perfect 10 - he said I was slightly awkward or I think he meant my tissue type…… !!! In his opinion this was the best...
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Hospital Appointments

26/01/2015 09:00
Looks like it is one of those weeks in terms of hospital appointments. Just back from my weekly blood test, I am expecting a transfusion on Wednesday, results later today. Tomorrow I see the transplant consultant at University Hospital Southampton, so will find out what progress there has been in...
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Watching ..........and Good Luck Linda and Dave

23/01/2015 10:59
MDS patient support group has a closed facebook page which is a fantastic source of support and positive thinking, from people and their carers who have been diagnosed with MDS. I wanted to set out support for two people and their families who are in hospital currently at slightly different stages...
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Still Recovering and signed off!

20/01/2015 10:50
As predicted blood test showed my Haemaglobin levels below target so I am in Day Unit for 2 Units of blood and platelets. Levels were not quite as low as I might have thought, looking at the positives. Usual cheerful and helpful staff at Day Unit, however time does drag.  In discussion with...
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Slower than I anticipated

18/01/2015 15:46
Well been out of hospital 4 days, not surprisingly frustrated at how long its taking to get over the flu, infection and hopsitalisation. So having to take it easy. Blood test tomorrow and as I am sure my "battery" is running low - transfusion will follow as sure as night follows day. There is a...
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