Article archive
Mixed news
08/11/2015 17:11
Well after a relatively quiet week for my third week at home, I've had quite a rough week. My CMV really decided to jump out of its box, they also think this has impacted on my blood readings and I needed a blood transfusion on Friday. Anyway as part of the treatment I am being fitted with a "baby...
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Second week at home!!
25/10/2015 20:09
Just need to start with a reminder that today is international MDS awareness day which is important given the lack of knowledge about the condition. I recorded a 20 second piece for MDS which appeared on facebook page and twitter !
Attended the twice a week clinics, bit disappointed...
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Lovely being at home
18/10/2015 16:36
So I have now been at home over a week, and am getting back into swing of it, can't say I miss 2am observations! Having home cooked food and cakes has certainly helped my appetite improve. Just pottering around the house is more exercise that I have had for 5 months, although stairs have been a...
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Can you believe it - writing this from home!
09/10/2015 00:00
So after two transplants and 5 months 6 days I have finally managed to get to the point of being discharged, after what can only be described as an incredible roller coster ride through highs and lows. But thanks to the dedication and skill of the fantastic multi disciplinary team at the Bone...
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Improvement Continuing
01/10/2015 13:56
Last weekend I had two afternoons at home which illustrates that I continue to improve. I had a great time and enjoyed Sally's home cooking - after almost 5 months the good hospital menu becomes a challenge. Highlight of the weekend besides spending time together had to be Roast Dinner.
I'm...
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Have you got a London Marathon place - can you consider MDS as your charity please
01/10/2015 13:54
Very soon people will be finding out if they have got a ballot running place in next years London Marathon! If you are lucky enough, or know someone who gets one, could you ask if they would represent MDS UK? We are a very small blood cancer charity providing support throughout the UK and we...
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Beginning to show some improvement
22/09/2015 16:08
Well it was a difficult beginning of the week, but slowly improved. I was a bit down to say the least at the beginning of last week, which even if I say so myself has not really been me.
Started a new drug for CMV on Thursday ( twice a week ) and despite protest from Baxter it's a...
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4 months today !
03/09/2015 16:15
I am sorry for followers of my blog for the delay in writing it but I have been pretty unwell at the moment and Sally is typing this on my behalf.
The CMV virus has taken it's toll and everyone is working flat out to get it under control. The problem is that the drug used to combat the virus has...
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Infection but progress
22/08/2015 15:55
Here we are on day +15 and it has been a difficult fortnight and apologies for not updating my blog during this time.
Stem cell transplant went ahead as planned but as I have previously said I have been fighting infections. One of these infections turned out to be fungal pneumonia which has knocked...
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Day plus 3
10/08/2015 16:34
Transplant for my new stem cells arrived from Germany on Friday and I received them at about 6.00pm. It took three hours for the cells to go in which is good news as there seemed to be plenty of them !The whole weekend felt as though I had sleeping sickness which I guess is a result of the...
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