Article archive
Not the news I wanted to hear
08/06/2015 16:43
In essence my Consultant now believes that all my episodes last week may well be me rejecting the new stem cells, as my numbers have remained flat. The are doing further tests to confirm as well as another Bone Marrow Biopsy this week to provide the appropriate confirmation. Apparently...
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An even more eventful period ....... bringing you up to date
05/06/2015 11:22
I must start with an apology but its been a really difficult period both for me but really for Sally watching on and helpless to do anything but be here (which in my eyes is a lot!!)
So hot on the heels of the fantastic news that the new stem cells were starting to do their thing, i started...
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Day +13 - Its been an eventful week or so!!
27/05/2015 15:43
Apologies for not completing my blog for so long, but it has been an eventful week with various episodes of reasonable moments and dreadful days!
As predicted, the periods of flat blood counts following conditioning does take it's toll. Firstly the face furniture (feeding tube) decided to...
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Tuesday - Day minus 2 to Day plus 3
17/05/2015 16:30
Well Day minus 2 is fluid day!! This was to accompany the dreaded Melphalan which made me feel sick and bloated due to all the fluid that was pumped in over 30 hours.
Day minus 1 - hurray no nasty drugs but had the hangover from hell from the effects of the Melphalan. I didn't manage to get out of...
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Sunday & Monday Day minus 4 and Day Minus 3
11/05/2015 21:30
Sunday - Day minus 4 Overall a quieter day for treatment today, spent several hours this morning free from "Baxter" now that Campath is finished. Managed a circuit of my exercises. Its actually surprising that I have been here a week now! Whilst I might think that it has gone quickly I know...
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Isle of Wight Challenge - Well Done + pictures
10/05/2015 13:14
Well done to Cate and team raising 5k for MDS
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Friday & Saturday D minus 6 and D minus 5
09/05/2015 12:07
Friday Day Minus 6
Despite the excitement of the general election I still had a good nights sleep!!! It was on TV all day as well so a back drop to the days events. Fludarabine this morning and final session of Campath later today, which I am pleased to say went without any impact....
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Wednesday & Thursday - D minus 8 and D minus 7
07/05/2015 18:15
D Minus 8 Pretty full on day as I needed some blood and platelets in addition to the medication regime. So was hooked up for probably 22.5 hours (not really counting) to my new best friend "the pump". Still in my unhooked up time did my first circuit of exercises set out by the physio - so...
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Monday & Tuesday - Day Minus 10 and minus 9
05/05/2015 16:18
Monday was a pretty rubbish day with the anticipated reaction to Campath ....fever; shivers; high pulse; temperature and sickness. I think that frightened Sally - I was out of it at one point. Combining the various IV potions means that I am almost permanently hooked up. But amazing care and...
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Admission Day today
03/05/2015 10:21
I phoned ward as requested this morning and admission is today around 2pm. So all the waiting is over and the next stage begins. I am grateful to have had so many expressions of good wishes and offers of support for which Sally and I are really grateful. It is nice to know that so many people are...
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