Article archive
Conditioning has begun now on DAY -5
02/08/2015 09:45
The conditioning treatment actually started on Thursday and as last time I reacted on Day 1. The regime is different to last time as it is aimed at ensuring my immune system is really suppressed. Transplant of the new stem cells is due on Friday. Of course Baxter is now much more gainfully...
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Good News - What a relief!
24/07/2015 11:50
I'm delighted that my new German donor has agreed and the new date for the transplant is 7th August. It's really a coincidence that the day is exactly a year since I attended QA to receive the diagnosis of MDS - what a year!! So the conditioning treatment starts next Friday, it will apparently be...
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What happened to Baxter? and Another infection!
19/07/2015 11:36
A couple of adventures this week the first involves Baxter who as I had reported previously was definately under occupied. So in the middle of the night early in the week he was spirited away by one of nurses as someone really needed his three pack! It was replaced in the morning by his baby cousin...
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Its a waiting game !!
13/07/2015 16:32
Well the good news is that the infection appears to be clearing up according to the infection markers in my daily blood tests. Of course the downside to that is that I am becoming impatient to know what the next plan will be. As yet we know that several options are being actively being pursued but...
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Yet another setback !!
05/07/2015 16:27
On Tuesday received the news that the Taiwan donor was not available for 12 months and the US donor likewise. So mid July transplant is off. The search for a donor has started again from scratch, clearly not the news Sally and I wanted to hear (to put it mildly) but we have to be positive and know...
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Infection Continues
28/06/2015 16:12
Week nine has started the in the same way as last week and the infection continues to make me feel pretty rubbish. There is a chance this week that the Hickman Line may have to be removed to assist in getting rid of the infection. I'm not looking forward to going back to having the dreaded...
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Slight change to the plan........
21/06/2015 15:47
Well its 7 weeks ago this afternoon that I came into hospital and this room.
Its been an eventful couple of days for me in the hospital, not helped by having a temperature spike in the early hours of Saturday morning, which triggered the usual and speedy responses (as I am now becoming...
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Next Steps
17/06/2015 15:54
So test results are back and importantly I have not devoloped antibodies against the donor cells, which is good news. The plan now is to go back to the donor for another batch of stem cells. Too early to be clear about timing. Given my lack of immune system I am in the best place to avoid...
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Well Done Bracknell Forest Flyers
16/06/2015 17:11
Well done on Sunday -That was brilliant! A massive well done and thank you to all of you who ran - plus a big thanks to those who came along to cheer the team on.
And finally, most important of all,the fundraising total, including gift aid, has now smashed through the...
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The waiting game ...........and good luck BF Flyers
13/06/2015 17:50
As indicated last week, transplant did not work and I have undergone a range of tests and had my fifth Bone Marrow Biopsy last Thursday. All of this should come together next week to help consultant and team determine the action plan for next steps. In the meantime I am remaining well and my...
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